National charity DEBRA is pleased to announce it has teamed up with NHS healthcare professionals and invested £105K into an EB podiatry care project. The project includes the launch of the first international Clinical Practice Guidelines (CPG) for podiatry in EB. The CPG is led by Dr Tariq Khan and Mark O’Sullivan and outlines recommendations for clinical care based on scientific evidence and expert opinion, which is vital in providing internationally consistent standards of care. The EB CPG outlines best podiatry practice and provides awareness and guidance for healthcare professionals when treating EB. The CPG will help increase clinician and patient knowledge of EB and the available treatment options. The CPG can be downloaded from the DEBRA website: https://www.debra.org.uk/healthcare/podiatry and at https://www.debra.org.uk/downloads/community-support/podiatry-cpg-tariq-khan-et-al.pdf
Dr Khan has worked for over 21 years as a Consultant Podiatrist and Specialist EB Podiatrist at Great Ormond Street Hospital and Mark O’Sullivan is the EB Team Podiatrist at Solihull and Birmingham Women’s and Children’s NHS Foundation Trust.
DEBRA is the national charity that supports people affected by the skin condition Epidermolysis Bullosa (EB.) EB is a potentially fatal genetic skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA funds specialist NHS EB nurses, pioneers research to find a cure, and provides help, advice, and support for people in the UK living with EB.
Debra does not receive government funding and is reliant on voluntary donations to fund their valuable work. The charity funds up to 25% of all specialists EB nurses in the UK and supports many healthcare specialists and projects.
We are especially proud to announce the launch of the first international Podiatry Clinical Practice Guidelines (CPG) for healthcare professionals funded by DEBRA. The CPG covers advice for all types of EB and will help people living with EB in the UK and around the world.”
Dr Tariq Khan, Consultant Podiatrist and Specialists EB Podiatrist at Great Ormond Street Hospital who lead and developed the EB Podiatry course said: “We are especially proud to announce the launch of the first international Podiatry Clinical Practice Guidelines (CPG) for healthcare professionals funded by DEBRA. The CPG covers advice for all types of EB and will help people living with EB in the UK and around the world.”
Claire Mather Director of Healthcare at DEBRA said: “We are delighted to fund the EB Podiatry Project and the first international CPG, developed and led by Dr Tariq Khan. DEBRA is committed to working in partnership with the NHS to provide life changing specialist care across the UK to the EB Community. We’ve donated £105k to the EB podiatry project and we are proud to have been able to fund Dr Khan’s work in this way. We do not receive government funding, we rely on voluntary donations to fund our work. We would like to thank all our supporters and donors who have helped us raised the funds to do this valuable work.”